Update

Allex is not doing well- she is inpatient at Children's hospital in Seattle.  If you would like to visit, she is registered as Allexandra Apley-Conner and she is in the SCCA, 3rd floor, room 3290.  Visiting hours are 10am till 8pm.

Allex's health has dramatically declined since we returned from Japan.  She had a few days a jet lag, a day of pure fun when she received a huge box of gifts from Japan and spent the afternoon at SakuraCon (An anime convention in Seattle), but then she changed and she ate and drank very little and was not awake or coherent.  Allex complained of sever pain in her neck, shoulders and right arm. 

Last Wednesday (3/29) we headed into Children's hospital for Allex's weekly doctors appointment and the 6 week MRI's and CT's to gauge how well the Tarceva and other treatments were going.  The results were poor.  The MRI shows dozens of new brain tumors and the tumor in her brain stem has regrown.  The CT scan shows her left lung has collapsed - causing her heart to shift right and forcing it to work harder.  The right lung is about 50% tumor and 25% collapsed and is surrounding by a growing amount of fluid.  The tumors elsewhere in her body are multiplying and growing in size.  The news was not good.

Allex was admitted to Children's Hospital that night where she remains heavily sedated. Her oxygen sats have sagged to as low as 72 and she struggles to breathe.  We have her on oxygen to make her more comfortable.   Anti-seizure medication and morphine ease the pain and make her body less aware of the lacking oxygen levels.   Doctors are not pushing a feeding tube and we have discontinued IV fluids because they don't believe it is necessary now.  The optimistic outlook last week was 7-14 days and she has fought for each of the last 5 days.  We pray for a peaceful passing but always remain hopeful for one last miracle.

Thank you for your prayers and support.
Aaron & Sharon