Buzz Cut

Last week was a 4 day week at Children's Hospital- lots of testing and the discovery of fluid build up around her right lung.  Round 2 of Chemo continues tomorrow, chest radiation is now needed for a lung tumor that is not responding to the chemo- it will begin as soon as there is an opening in the schedule at UW, and the shingles (adult chicken pox) are finally starting to heal.  The blood transfusion from a little over a week ago has helped with Allex's energy level and she was able to attend her grandfathers funeral this last weekend.  She came home exhausted from the trip but happy that she could go and say goodbye to him.

Allex was down to about 10% of her own hair so she finally opted to buzz the last few strands off..on the condition that Pete and Aaron shave all of theirs off at the same time.  Aaron has hair that grows back so fast though it never really got smooth...LOL

Luckily she still has a sense of humor on most days!

We are still waiting to hear on dates for the Make A Wish trip....hopefully soon.  Allex's over all health has been declining so our window of opportunity for travel is diminishing.

Still waiting on approval for Tarceva from the insurance.

Make A Wish does not cover it (Tokyo Disney) since it is not part of her specific wish.  There coverage is for the transportation to Tokyo, hotel for 8 nights and the specific wish to see the Animation Studio.